life

Anisah vs Her Body: Round 3

Life Updates

2013: Laparoscopic Cholecystectomy. 2014: Pancreatitis. 2015-present: Sphincter of Oddi Dysfunction.

I’m stuck in a kind of stand off between myself and my doctors; they’re aware of how detrimental my condition is to my physical and mental wellbeing, yet they’re reluctant to take any action due to the potentially life threatening complications associated with it. It’s made furthermore frustrating by the fact that SOD is so rare in patients, especially at my age, too.

2015 was a year completely dominated by pain and I hope never to relive the experiences I endured that year again. When you’re in a situation such as mine, it’s incredibly difficult to adopt a facade of positivity and automatic “I’m fine” responses to the repetitive, rhetorical “are you okay?” In short; no, I’m not okay. It appears I’m fighting my body on a daily basis in the hope that it’ll stop trying to reduce me to my knees from unrelenting pain. But that’s not what people want to hear.

Thankfully, I appear to have inherited my parents’ strength and willpower; I am a survivor and I will fight this to the end, but its left me questioning – at what cost? I’m unable to go about my daily activities without being crippled by the pain at least twice during the course of the day. I can’t eat properly. The prospect of a (second) good university experience is hampered by pain. My anxiety is through the roof. It’s all a vicious cycle with no bright light – yet.

I’m a strong believer in things happening for a reason, by forces greater than us. There is a plan for me, I just need to trust in myself and those forces that I’ll make it through to the other side. It’s been a traumatising road these past few years and I’m incredibly tired of fighting, but I’m also desperately hoping this won’t continue for much longer and that this is just the final stretch in a (literally) gut-wrenching battle.

Throughout this ordeal, I’ve managed to retain a somewhat positive outlook on life fundamentally thanks to the strong support network of friends and family I have around me. I say this time and time again to the point where these words almost come across as empty but it’s thanks to my loved ones that I have come this far. My mother raised me to be strong, positive and almost certainly not a defeatist; my father raised me as a fighter. It is because of their support and unrelenting positivity not to mention belief in me that I’ve managed to make it this far. My true friends stood by my side and helped me battle against my health during my darkest hours, giving me the strength to fight when I thought I could fight no longer. I’ve come to know some truly wonderful people over the past few months who have completely changed my outlook on life, not to mention made me a better, stronger person. I cannot thank them enough for simply being in my life, and I know I’m blessed beyond words to have compassionate people around me. It’s because of these people that, during the dark hours, I can see a light. Perhaps it’s not the light at the end of the tunnel, but the promise of light is good enough for me.

So, amidst a sea of uncertainty, I’m going to give this illness everything I’ve got and battle through to the end, armed with a positive mindset and determination to overcome it before it has the chance to consume me. Forgive me if I backtrack every now and then, though.

On a final note, thank YOU to everyone who’s taken the time to simply read my blog, not to mention commenting on it, too. From my work colleagues to best friends to family friends: your support means the world to me. I don’t even need to tell you I love you; you already know. Without you, I would not be half the person I am today.

A x

Perspective

Life Updates

It’s March 2nd and my first day back home after spending 5 days in hospital has come to an end. I have thoroughly enjoyed being wrapped up in a blanket watching ‘The Night Manager’ and ‘The People vs OJ Simpson: American Crime Story.’ However, I’m not the same person I was when I went in to hospital.

Last Friday night, I was left feeling a little on edge after experiencing discomfort due to ongoing stomach pains. Of course, stomach pains are nothing out of the ordinary for me but they usually went away after an hour or so and even after taking medication, I was still suffering. Things reached a peak at around 11pm on Friday night; I was doubled over in pain, unable to breathe without feeling a stabbing pain rippling through my upper abdomen. Not cute. By 2.30am the following morning, I was hooked up to an IV line. Over the course of the next 5 days, I was transferred from a&e to the surgical assessment unit, to the day surgery unit. But that isn’t the point of this post.

Whilst in the day surgery unit, I came across many patients being admitted and transferred and I guess I should’ve been prepared for some sticky situations – after all, this was a surgical unit. On Monday night, a young patient was admitted to the bed next to me after undergoing surgery. It was clear that something hadn’t gone too great with the operation because she was screaming in agony and bleeding out. This was at roughly 10pm so visiting times were over and the rest of us in the bay were alone and it was pretty quite, with patients either zonked out on morphine or trying their best to sleep. Her parents were with her to ensure she settled in okay and was recovering from the operation, when things took a sudden turn for the worse. I heard the patient’s mother call the nurses frantically, telling them her daughter was feeling light-headed. Within two minutes, the patient had gone into cardiac arrest from bleeding out.

The next 20 minutes were a blur of surgeons, anaesthetists and nurses running around, giving her oxygen and trying to stop the bleeding. With no theatres free to perform emergency surgery, they were forced to stop the bleeding there and then in order to save her life. Her parents were hysterical with fear and surgeons were shouting about the lack of blood bags available to them – it was terrifying. I guess I forgot that in hospitals, things do go wrong and situations like this do occur. It’s not common but it does happen and in the moment, everything just fell away. The pain I was experiencing, the sickness, all the symptoms just fell away because all I was thinking of was how young this girl was next to me and how numb I felt.

I don’t know if they managed to save her. She didn’t come back the following day, and neither the nurses nor other members of staff had any clue as to what happened in that operating theatre. Situations like this put everything into perspective; life is too unpredictable and we ought to make the most of the good health we have. What is life if we don’t have our health? Right now, I can’t get those 20 minutes out of my head. I’m not sure if I will forget the panic in her parents’ voices, the panic in the surgeons’ voices and the sound of the blood pressure monitor dropping. It’s a horrific reminder of the fact that we’re only on this planet for a limited amount of time and we ought to make the most of every single second; by being good within ourselves and towards others. Whether you believe in God and His power to guide you or not, it’s important to have a pure heart as that alone makes us immortal.

“Is not He Who listens to the distressed soul when it calls on Him, and remove its suffering, and makes you inheritors of the earth?…” [Surah al-Naml 27:62] 

A x

 

 

 

A Special Note to a Loved One

Original Writing

It’s my (not so little) cousin’s 14th birthday today!

He’s the closest thing I’ll ever have to a sibling and I’m beyond proud of how far he’s come in life. We’ve had so many obstacles thrown our way over the past few years and he’s overcoming every single one like the miracle he is.

I never knew it was possible to love someone as much as I love him. From helping change his nappies when he was a baby, to teaching him how to read and write, I’m always going to be grateful to God for giving me such a precious gift. There are times in life when God challenges us, but He only does so in order for us to realise and embrace our true potential.

Everything I do, I do for you, pal. One day you’ll see that.  Alhamdulillah, thank you for blessing my life.

“…And If you would count the blessings of Allah you would not be able to count them…” [Surah Ibrahim 14:34]

Anisah x

My Battle With Anxiety: 2 Years On

Mental Health Activism & Awareness

Anxiety is a general term for several disorders that cause nervousness, fear, apprehension, and worrying… These disorders affect how we feel and behave, and they can manifest real physical symptoms. Mild anxiety is vague and unsettling, while severe anxiety can be extremely debilitating, having a serious impact on daily life.¹

Sounds about right. I still remember the first time I heard the word, instantly associating it with weakness and fragility. A flaw. There are many misconceptions associated with the term ‘anxiety’ and understandably so, considering the word is so broad and broadly used in society. I also believe it’s used too loosely in day to day life, contributing to a lack of understanding. Despite coming so far as a race, we’ve become stuck in a place where we cannot manifest the ability to treat people equally based on their mental state, which is undeniably a shocking position for us, as humans.

The first time I told someone outside of my family about suffering from anxiety, I was terrified and lost in a world where toxic thoughts were swimming around in my head and I genuinely believed they would save me from drowning. Initially, telling someone else about this was an instant relief. I felt a little lighter knowing I’d shared something so destructive in my life with someone else who’d perhaps be able to help me through it, providing support where possible. Sadly, I was wrong. I’ve since learnt that people will certainly provide a supportive front but that’s all it is – a facade. Some of us are designed to deal with heavy emotional distress and some of us simply are not: and that’s okay.

Coming to terms with anxiety meant having to re-evaluate my relationships and friendships; it meant taking a step back and assessing what/where the foundation of my anxiety attacks were. I soon came to realise that a significant amount of stress I put myself under was based on being treated a certain way by people I believed I was close to. Without going into too much detail, I wasn’t treated very well by the people I held dearest to me, and I deserved much better. Unfortunately, I just couldn’t see it at the time, so it was a vicious cycle of feeling second best, then apologising for feeling this way only to be treated poorly a few weeks later. I believed that was okay, too, which is the saddest thing. My anxiety attacks were set off by feeling like I wasn’t good enough, which escalated until I reached breaking point. This was a continuous pattern throughout most of 2014 and early 2015.

I only really noticed an improvement in my mental health when I surrounded myself with positive influences and strong, healthy friendships. People who loved me unconditionally, who picked me up when I was down and never treated me differently based on my anxiety disorder. Cutting toxic relationships out of my life has massively transformed it. I’ve also found that keeping myself busy has helped immensely; the panic attacks come less often now, and I have less time to overanalyse every aspect of my life. It could be inferred that overanalysing has its perks (kind of) – I am an perfectionist and if something isn’t done to my standards, I’ll continue to work at it until I’m happy. As long as my mind is preoccupied, my anxiety levels remain steady.

Naturally, there are those days where I feel incredibly low and for no apparent reason. This is what I feel is imperative to underline and draw attention to; we have anxiety attacks, panic attacks and feel low for sometimes no reason at all. It just happens and there’s nothing we can do about it; no matter how much someone offers to comfort me, I cannot escape the prison walls of my brain, with voices telling me a thousand negative things all at once. And occasionally, the only thing I can do is cry about it and move on from there. Everyone reacts differently to anxiety and it’s formidable attacks: from crying to remaining silent for long periods of time, sometimes it’s best to leave someone be if they cannot comprehend what’s going on in their head. The same applies to social anxiety – I can’t control the panic attacks every time I enter a room or a bus full of people. Regardless of whether you’re my friend, relative or a stranger, I will panic when entering a confined space containing a number of people. That’s just the way it is for me, and no amount of therapy has managed to change that. (yet)

But if I’ve learnt anything over these two years, it’s to embrace life and all it’s got to offer us. I spent disgustingly too long distressing myself over whether or not I was a good person, if I was good enough. Surrounding myself with good people was what helped me through my darkest hours. People who inspired me, motivated me. Finally, writing has been the most effective form of therapy for me. It’s not even the factor of others going through similar experiences, it’s just ten times easier to deal with when I’m not holding it inside, when it’s on paper. Getting over the physical health stuff was tough enough, but coping with the trauma of a mental health disorder is something else entirely.

My anxiety hasn’t gone away but it’s most definitely become easier to live with. The good days almost always counterbalance the bad, and that’s what I’m focussing on.

A x

¹http://www.medicalnewstoday.com/info/anxiety/